Please...

Just finished posting in All Things Ephemeral (Link on right side of this page), and as I read what I'd written I realized just how hopeless the message was, how... grayscale.  I thought, maybe if I took another approach, poured myself into something, maybe music, and allowed myself to go and be somewhere other than in my own head for a bit---maybe, just maybe I'll survive this.  But even as I write here I realize that there isn't going to be a single thing I can do today to elevate me out of this place.  I don't even have the energy to be angry at my lack of control over this situation.

"Somehow, some way, some day..."  I keep saying to myself.  Whatever.  It is what it is and I guess I'll just have to roll with the punches and try to stand up again once I recover my balance.

Well.  This was an epic failure, wasn't it?

A life comprised of seconds on the face of a clock...

I feel time now.  I feel it when it's restless, frantic, soulful, and even when it slows down.  In some ways I think it slows hoping I'll catch up.  I don't think we speak the same language.  The numbers are carved away by wasted effort and endeavors destined to end up in a meaningless heap of shattered dreams, broken promises, and those experiences which bind them in quiet unity.

The days remain long, yet are over before I can catch my breath.  I no longer care why this is, or why it never seems to change.  My effort to reinsert myself into life again--actual life--fall short.  I don't care about the answers or explanations anymore.  Why on earth would I care when answers seem to only end up echoes that pass through the invisible bars of this prison-like existence?  Doesn't mean anything.  Not really.

I don't like feeling time.  I just don't.

Twilight--my favorite time of day.

It's a small part of the day and one you may miss if you blink.  Stay awake.  Just stay awake.

Almost the entirety of my escape processes include music, where the fabric of reality and the fantasy of reclaiming a life I once had clash in, sometimes, startling and colorful ways.  I don't delude myself into thinking that I don't know what really is or isn't; who cares?

Falling asleep listening to carefully constructed playlist is the only oasis I know.  While some songs grant me enough peace to fall asleep others wake me, and it's the message rushing to the forefront of those that bring me out of my slumber that are the most unsettling, the most telling.  I sometimes think of those moments as my subconscious crying out for help, that the sleeping soul and the wakeful spirit will be one again.

Creativity sleeps.  Dreams are too distant to remember.  Hope sits quietly beside me, distant and unmoved.  Memories are places my conscious mind tries to take up residence when I'm unable to sleep and surrender to what smothers my soul.  The abyss is real, and the truth looks down and recognizes its reflection in the darkness.  It's not as grim as it appears on the surface.

I no longer try to make my conscious and subconscious shake hands and call a truce.  The battle is a quiet one below the surface....

When sorry's below you...

Are you with us, darling?
Cause you treat it like a game
And you mess yourself up
It's such a shame, such a shame
You got issues, darling
Cause you waste it all away
You're full of yourself
It's all in vain, all in vain

And it breaks my heart
And it breaks my heart...

(Oh, oh)
Cause every time is the last time
(Oh, oh)
And I'm kicking myself just trying to be understanding
(Oh, oh)
Tell me how did you think that?
(Oh)
You're leaving me waiting and acting like I'm so demanding
(Oh, oh)

Cause it's never your fault
When you're keeping your knees clean
And sorry's below you
It's always me, always me

You told me you could change your ways
You collecting scars but you look away
You promised me you could make it better
You told me it won't be the same
But your eyes stay shut and my screams fall faint
I only wanted to make it better
Make it better
Make you better

The Handshake.

A relationship is like a handshake.  One person extends their hand and the other extends theirs in acceptance.  This is the best case scenario, however, and relationships leave one person waving their hand in the air and feeling foolish.  At some point that dance just doesn't work anymore and we have to decide wether it's all worth it or not.  But how do we know WHEN it's time to place our hand back in our pocket and walk away?

There's no difference in friendships and we've all seen those fail miserably due to one-sided participation.  It's not usually an instant fail, btw, and we come to the conclusion to walk away after a lot of energy is spent trying to be the one acquiescing, initiating, or taking the blame for the short-comings within the relationship machine.

So if we know how it works in friendships, why do we take so damn long with romantic relationships?  I think part of it is that there's a much larger prize at stake when it comes to that kind of connection that leaves you ultimately vulnerable and exposed.  That other person, unlike a friend (usually) has seen you literally at your worst, your best, naked, knows most if not all of your secrets, and the love and affection that ties it all together is not that easy to break.  In most cases.  Either way, there's just a lot at stake when talking romantic relationships vs friendships.

Friendships do last longer.  And if you think about it, it's most likely because you're not living with that person or trying to divvy up responsibilities, not relying on that person when it comes to the hard times.  I mean, yes, there is some of that, but again.... you just can't compare the two.  There is an exception, however, to this rule, and that is that we actually can apply what we are willing to put up with when it comes to carrying the load of that relationship.

I don't care about the numbers, myself.  Wether you call it 50/50 or 100/100 it still requires both sides to assess what's what and decide a compromise when one side is no longer able to carry the larger portion of the load.

My point here is this: At some point we have to acknowledge when something is harming us, wether it's physical or emotional harm, be it stress or overt abuse, we absolutely HAVE to make a decision at some point while we still have enough of ourselves left, before any real long-term damage is done.

Every day I'm reminded of how much I have to carry, what I'm left to be responsible for, and just how little energy and strength I have to take that on.  Physically I grow weaker each day.  My specialist has upped the Azathioprine about as high as I can take it, and I'm waiting to see if/when this begins to pivot the illness and begin to heal what's wrong.  In the meantime I'm extremely weak, often sick (nausea, etc.), and I have to lay down in bed several times a day now.  This means little gets done because I'm not able to do it myself.  Simple things, really.  Chores that I could handle easily back when I was healthy, living alone and with many more time-consuming responsibilities.  The difference between he and I is that I did what needed to be done and was glad to do it.  I can't live in a dirty or nasty environment so fight my way through the day trying to do what little I can.

I'm so so so done with this.

And since the communication is one-sided (out of his laziness. No joke there.) I'm beyond exhausted. I'm back to my focus being on ONE thing and ONE thing only--getting well.  I will be well enough to take my life back when the time comes and he's going to find himself in the dust when it happens.  It's his own doing, and he's not going to be happy about it when it happens, I promise.  He's been warned of this, and he's coasting along like he can't see it happening already.  But it is, happening already....

The Truth.

The world has gone mad.  Or more specifically, America has gone mad.  In all my life I've never seen such division, such bitter hatred on the left, such utter madness.  And it is madness.  I don't watch the news anymore because it's simply the most depressing thing ever, honestly.  We all know the media lies, stretches truth, etc., but recently trusting anything put out by the media is just buying into fiction.  And to that I say--open a book and read, because there's more truth in a Stephen King novel than there is on CNN, MSNBC, FOX, etc.  If you're going to waste time, might as well have fun, and there's nothing fun about what's going on in the media.  And worse, are those buying into the garbage.

Whatever happened to the truth?  What's happened to people that they're SO willing to except, embrace, and repeat lies that have been repeatedly debunked?  Rhetorical question, because we all know that people will ultimately believe what they want to believe and there's nothing anyone can do to change that.  Once sucked into the gaping black abyss of a lie--it takes a tremendous effort to find your way out.

As for me, I choose not to buy into the garbage.

But I'm sad to see how much hatred there is in our country, hatred born of the dirty side of government, of politics, and of greed.

I'm not sure at this point that any one thing or person or event could turn it around.  People are to blame for their own thoughts and actions.  They make the choices, and no one is twisting their arm.

It's just so tiresome.

We don't have to agree with one another to be civil.  We don't have to think alike or look alike to be civil.  We don't even have to like each other in order to respect one another.  All social graces, all levels or morality and decorum can be maintained under almost all circumstances if we make the choice to rise above it all and do the right thing.

I have no idea what the outcome of this election will be, nor do I even pretend to think that we're all going to end up changed by the end of it all.  We're already changed.  All we can do now is dig our heels in and hold our ground despite the odds.  I'm ready to do that, and I know a lot of others are as well.

We'll take things day by day like anyone else, but none of us are willing to be bullied by the 'powers that be' or radical domestic terrorist groups.

They can try like hell to stop us.  But here's the deal: We're not going anywhere.

Deal with it.

The Real Donald Trump

Dan Scavino said today that it's a shame the media will never talk about or show the kind heart that Donald Trump has. Those of us who grew up seeing the interviews from as far back as the 80's know he wasn't hated but rather watched in awe. How could a super wealthy guy could be so... down to earth? Well, he just is, and he always has been. While the media and establishment try their best to bring him down ...it just doesn't work, and it won't because most of us who support him already know of him. We've paid attention because, well, how can you not? So when you hear the slander and lies, and they are lies, remember this: A lie will travel the world and back while the truth is still putting on its shoes.

The Status Quo.

It's been a week, and this entry is going to be brief and probably more than a little boring.  My goals, as I've spoken about often, are to purge thoughts, etc. in my blogs.  As of today my thoughts are fairly off, meaning I'm having trouble really understanding what it is I need to talk about.  This dullness becomes the color of all of my life these days as the prednisone withdrawal wreaks absolute havoc on my body; This is the worst thing I've gone through to-date.

While I know that withdrawal will bring miserable consequences, ones that often can't be avoided, the possibility that there is something else going on is [possibly] evident in what I'm experiencing.  Could it be that the withdrawal symptoms are simply symptoms of some other unknown problem yet to be discovered?  My liver Dr. seems to think so.  But damn.  I can't deal with this much longer.  Someone needs to get on finding out what the hell is kicking my ass SO badly that I have no quality of life anymore.

As I type this entry I have to lean my forearms on the laptop, putting my arms at my sides often as well because I simply cannot hold them there for long.  This weakness is hardly tolerable on any level.

I'm simply too weak to keep typing... just wanted to check-in...

This is really getting ridiculous.

Weak...

It's hard to post entries these days with the growing weakness in my limbs.  Even holding steady with Prednisone dosage the weakness just seems to take over everything, seemingly unstoppable.  I've made major adjustments in my diet, opting for extremely bland food and following a diet that's supposed to help a sensitive digestive system.  I've also stopped one of my medications for reflux (I'm on 2) because it can cause GI issues.  So far I've not seen a lot of improvement, but 'some' improvement is definitely better than nothing in that respect.  Still, the weakness is really taking over things, and I have to say.. I'm really sick of it all.

I dread waking up in the morning.  Sitting up on the side of the bed takes great effort, and lifting my arms to dress, etc. is becoming something I have to 'will' myself through.  I long for the days when I could bound out of bed, ready for the world and whatever the day holds.  This weak and tired person I've become I don't recognize, and yet here I am literally willing myself through what few tasks I'm able to do.  When will these doctors get to the bottom of everything?

Yes, the Prednisone and Aza (Azathioprine/Imuran) have helped SO many symptoms, brought my liver enzymes back into the normal range, but symptoms that persist have obliterated my quality of life almost down to zero.  What's next in the quest for 'healthy'?  I'm doing everything within my power to propel myself towards feeling better, healthy, vibrant--but my body isn't responding to anything and simply grows weaker by the day.  I've no idea what to make of it all.

The liver specialist I'm seeing remarked early on that he thought there was something else going on besides the AIH, remarking on elevated aldolase, which remained elevated even while on Prednisone.  My aldolase levels only returned to normal with the addition of Aza... not sure what that's about, but I know testing for myositis at this point is futile due to my being on prednisone and Aza--the two main drugs to treat myositis.  *sigh*

Well, my arms have completely given out, the muscles hurting badly as I type....

I'm out for now...