Normal. No idea what that means anymore. Every day something changes, and I'm left completely taken aback by the sheer ridiculousness of it all. But is it really ridiculous, or is it just that I'm finding I can't sort through the mess on my own and come to any conclusions as to how I'm going to deal with this ever-changing situation with my health? I've gone back and forth so many times with this and have yet to come up with anything that makes any sense at all. Maybe it's time I stop trying to make sense of what this is and focus on living with what I'm dealt with for the time being. And maybe, just maybe, I need my head examined. ;p Okay, so that's always a given, isn't it?
My focus is lost as well, and that's to be expected I suppose. Being sick, really sick isn't something that inspires keen insight and razor-sharp focus, now does it? I get that, and I accept that as my reality at the moment. Still, where do I go from here?
I'm not sure who's reading all blogs, some of my blogs, or just one... but I've been trying to sort through this newness from every angle, and as you can imagine.. I'm mostly failing. New symptoms jumped on board today, others have returned from my anemic past, and I'm left sitting here wondering who I can, if anyone, to ask for a re-test of my ferritin levels. Things is, I'm just too damn tired, too sick... to want to deal with leaving messages for nurses and waiting for a return phone call to state my case.
Nausea and a complete absence of an appetite; a huge change from yesterday.
Prednisone is known for messing with blood sugar, known for massive water retention, and a plethora of other undesirable side effects. They're necessary evils for those who have to take it to avoid potentially life-threatening complications of various diseases. In my case, I'm using it to get my body in remission from autoimmune hepatitis, something that will destroy my liver if I leave it untreated. I accept what must be done, of course. In the meantime, up until today I've had to fight off relentless hunger, which is a common side effect of Pred. Today.. is quite a different story altogether...
I noticed a few days ago that my taste has changed, and while at first it was only slightly noticeable, today a wave of nausea hit me and I realized my hunger was absolutely and completely GONE. In fact, the thought of food makes me sick to my stomach. This is a major turnaround and one I'm not quite sure what to do with. And yesterday, my tongue felt sore... as it does today, and with that soreness is an almost numbness. What gives?
No answers yet. But I'm starting to wonder if the prednisone has already begun messing with my blood sugar in a major way. I'm choosing not to think that, but instead.. I'm thinking maybe the anemia is returning. I don't know WHAT the hell is going on, but I can tell you I don't like it one single bit.
So now what?
I have absolutely NO idea.
Showing posts with label Iron Deficiency Anemia. Show all posts
Showing posts with label Iron Deficiency Anemia. Show all posts
Thursday, January 14, 2016
Tuesday, October 6, 2015
PART 1: Deciphering indifference: Don't waste my time
It's a chronic problem with T. It's a chronic problem with a lot of people in this world and is more evident now than ever. People have allowed a destructive numbness to creep into the very fabric of who and what they are. The consequences of embracing indifference is that it becomes a part of you, defining you, and ultimately destroying everything with its insidious whisperings inside your mind and heart. It's a comfortably destructive habit that will take everything about you and make it its own. It walks softly into one's life as a comforting buffer against anything and everything that makes you... FEEL. And in the throes of its seductive and blinding embrace... you can be ultimately lost forever.
Indifference is like the sting of a mosquito; with just the smallest amount of anesthetic you won't feel the effects until it's too late.
When blind indifference takes hold of a person it's usually a selective process that often singles out just one, at first unwitting, individual. Damage is done to both sides, but the effects of the one staring into the face of indifference are far greater in intensity and much longer-lasting. Honestly, as much as we humans try to distance ourselves from the hurtful effects we too often fail at removing ourselves effectively. That doesn't mean we don't on some level understand what's happening, and usually several attempts are made to make the other aware of what they're doing. But true to indifference's nature our words, actions, they all fall on completely deaf ears.
I've been through two relationships of indifference, and both times I ended up not caring a flip about that person in the end.
Over the last few years I've come to see indifference from new angles, and I no longer believe that I'm the one who has the responsibility to fix what's happening. On the contrary. I wasn't put on planet earth to fix anyone, except myself. If indifference is really all that person has to offer, they have absolutely nothing to offer. At least not to me.
While I've focused yet again on 'the thing' that I want to talk about, I haven't actually shared where I am in this whole thing.
Where I am in all of this and why talking about it matters...
In context, indifference matters a great deal when it comes to me and my life, my emotional and physical health. It directly affects how I go about the course of my life, the details of who I am and what I want and need are blurred beneath the sharp blades that attempt to obliterate all in its path.
Case in point: Following the first IV iron infusion for anemia there were symptoms that I couldn't pin-point, ones that usually put someone on alert. With my heart and lung issues, having severe breathlessness and chest pressure is one of those things you simply shouldn't ignore, no matter who you are. A smart person would at least mention it to whoever they're living with, or call someone to let them know what's going on... to be on the safe side. Though, I have to add that it's a good idea to call someone who actually cares, because the alternative could be deadly.
Roughly about a day and a half after my IV infusion I had an 'event' that evening that startled me. I had just gotten into bed and found the usual breathlessness that I experience every night (heart issues), but instead of easing a little.. it actually intensified... a LOT. I found myself feeling as if an elephant was sitting on my chest, and I was gasping for air. Literally gasping for air. This went on for about 10 minutes or so until I became so fatigued by it all that I actually fell asleep. But before I fell asleep I alerted T to what was going on. He was actually standing near my side of the bed and wide awake, and when I told him what I was feeling, while gasping for air between words, he..said.. absolutely nothing. Nothing at all. He went around the other side of the bed and laid down in silence while I continued to gasp for air.
I propped myself up on my side on one elbow, still unable to breathe correctly, still gasping for air and trying to slow down my breathing.. thinking it may help. I'm not prone to panic attacks and felt no panic at all while this was going on, hence my not insisting I go to the ER. Was it concerning? Of course it was! But I believed it would pass. And it did.. after I fell asleep. I was exhausted by the experience. Utterly exhausted.
The next day T went to work as usual and didn't mentioned what happened the night before. What this left me with, like several other 'acts of indifference,' was a deep-seated mistrust, and it went so deep to the bone that I cannot shake it no matter what. But in reality, I don't WANT to shake this mistrust because it's necessary. This isn't the first time or first issue that's come along to instill a strong self-protectiveness.
T, I have found, doesn't really care much for anything any further than about 6 inches outside his own skin. He's aware of it, I've tried to talk to him about it, strongly suggested he "Pick something and practice giving a shit," and all for nothing but wasted breath and wasted time. I don't have any inclination to continue wasting energy and time on someone who's not willing to give a damn.
Whenever something of vital importance arises, T is "absent." He's not plugged in. He's not at all invested. And this is why I grow increasingly weary of involving him in anything important that's going on with me, my health, and so on. He's basically now on the outside, and he's even indifferent to that.. until he feels it's going to affect him personally in some way. *sigh*
There will be a PART II to this, because it's a huge huge issue for me, and one that is helping to destroy my health. It's about time I talk about it ALL, and it's just too much for a single entry.
I'm exhausted. Deciphering indifference is a huge energy-suck, and I just don't have any energy to spare. If you don't FEEL anything---don't waste my time!
Indifference is like the sting of a mosquito; with just the smallest amount of anesthetic you won't feel the effects until it's too late.
When blind indifference takes hold of a person it's usually a selective process that often singles out just one, at first unwitting, individual. Damage is done to both sides, but the effects of the one staring into the face of indifference are far greater in intensity and much longer-lasting. Honestly, as much as we humans try to distance ourselves from the hurtful effects we too often fail at removing ourselves effectively. That doesn't mean we don't on some level understand what's happening, and usually several attempts are made to make the other aware of what they're doing. But true to indifference's nature our words, actions, they all fall on completely deaf ears.
I've been through two relationships of indifference, and both times I ended up not caring a flip about that person in the end.
Over the last few years I've come to see indifference from new angles, and I no longer believe that I'm the one who has the responsibility to fix what's happening. On the contrary. I wasn't put on planet earth to fix anyone, except myself. If indifference is really all that person has to offer, they have absolutely nothing to offer. At least not to me.
While I've focused yet again on 'the thing' that I want to talk about, I haven't actually shared where I am in this whole thing.
Where I am in all of this and why talking about it matters...
In context, indifference matters a great deal when it comes to me and my life, my emotional and physical health. It directly affects how I go about the course of my life, the details of who I am and what I want and need are blurred beneath the sharp blades that attempt to obliterate all in its path.
Case in point: Following the first IV iron infusion for anemia there were symptoms that I couldn't pin-point, ones that usually put someone on alert. With my heart and lung issues, having severe breathlessness and chest pressure is one of those things you simply shouldn't ignore, no matter who you are. A smart person would at least mention it to whoever they're living with, or call someone to let them know what's going on... to be on the safe side. Though, I have to add that it's a good idea to call someone who actually cares, because the alternative could be deadly.
Roughly about a day and a half after my IV infusion I had an 'event' that evening that startled me. I had just gotten into bed and found the usual breathlessness that I experience every night (heart issues), but instead of easing a little.. it actually intensified... a LOT. I found myself feeling as if an elephant was sitting on my chest, and I was gasping for air. Literally gasping for air. This went on for about 10 minutes or so until I became so fatigued by it all that I actually fell asleep. But before I fell asleep I alerted T to what was going on. He was actually standing near my side of the bed and wide awake, and when I told him what I was feeling, while gasping for air between words, he..said.. absolutely nothing. Nothing at all. He went around the other side of the bed and laid down in silence while I continued to gasp for air.
I propped myself up on my side on one elbow, still unable to breathe correctly, still gasping for air and trying to slow down my breathing.. thinking it may help. I'm not prone to panic attacks and felt no panic at all while this was going on, hence my not insisting I go to the ER. Was it concerning? Of course it was! But I believed it would pass. And it did.. after I fell asleep. I was exhausted by the experience. Utterly exhausted.
The next day T went to work as usual and didn't mentioned what happened the night before. What this left me with, like several other 'acts of indifference,' was a deep-seated mistrust, and it went so deep to the bone that I cannot shake it no matter what. But in reality, I don't WANT to shake this mistrust because it's necessary. This isn't the first time or first issue that's come along to instill a strong self-protectiveness.
T, I have found, doesn't really care much for anything any further than about 6 inches outside his own skin. He's aware of it, I've tried to talk to him about it, strongly suggested he "Pick something and practice giving a shit," and all for nothing but wasted breath and wasted time. I don't have any inclination to continue wasting energy and time on someone who's not willing to give a damn.
Whenever something of vital importance arises, T is "absent." He's not plugged in. He's not at all invested. And this is why I grow increasingly weary of involving him in anything important that's going on with me, my health, and so on. He's basically now on the outside, and he's even indifferent to that.. until he feels it's going to affect him personally in some way. *sigh*
There will be a PART II to this, because it's a huge huge issue for me, and one that is helping to destroy my health. It's about time I talk about it ALL, and it's just too much for a single entry.
I'm exhausted. Deciphering indifference is a huge energy-suck, and I just don't have any energy to spare. If you don't FEEL anything---don't waste my time!
Labels:
answers,
blog,
change,
confusion,
emotion,
escape,
fatigue,
finding self,
home,
hope,
indifference,
Iron Deficiency Anemia,
life,
mistrust,
trust
Thursday, September 3, 2015
Breaking through
Life has gotten slow and stagnant. But I guess it's a by-product of health issues that sap every single bit of your strength, stamina, vitality. Apparently it's an unavoidable outcome for a somewhat lazy health care system where doctors continue to treat lab values instead of people. This is not the actual topic of my entry here, so bear with me a minute... Here's my dilemma---a slow, and not quite steady, progression from test, to test results, to... no real solutions. What I'm left with is no quality of life. How the hell did I get here? As many times as I've asked that question, I've gotten equally as many... wait. No. I've gotten NO answers at all.
Screw it.
But do I really feel that way? In some ways, I do. There's a larger part of me that's had it, totally and completely HAD IT with feeling this way. It's been coming on for a few years, though some of the issues recently discovered appear as new---but it doesn't mean that they actually are. In fact, maybe it's the same issues just now revealed. Geez. I can't even get my thoughts straight on this.
I do what little exercise I can, when I can. I push almost every day for this, making sure the attempt is made, if nothing else. Mostly, I end up doing very little because there simply isn't enough energy or strength to actually DO the task(s). Doctors love to say... "Exercise will help." That's a whole lot like having an empty gas tank and expecting to drive. In fact, it's exactly like that. I simply don't have anything to work with.
Quality of life. I see so many people who don't understand just how blessed they are to feel healthy, be healthy, and be able to live their lives somewhat normally. I'm not judging them at all, but I am curious as to if they know just how blessed they are to ONLY have a minor headache, or maybe fatigue from staying up too late, etc. I would SO trade places with them.
But that's not the topic here either...
Yes, I'm having trouble getting to the f'ing point. It's one of those days, so it is what it is.
So what DO I know for sure? Well, I know my GP (who is a pretty good Dr.) is out of the country until next week and that his secretary/nurse told me that they prescribe iron tablets for anemia. Really? Because it seems to me that putting something into your body that your body can't hold on to is... like putting gas in a car that has a hole in the tank. *sigh*
I really want to know WHY this is happening. There isn't any real "Idiopathic" iron deficiency anemia. It's always caused by something. The most obvious things are checked, and when they show to not be the cause.. it's shrugged off. Why? IDA is NOT a minor thing, and it has terrible affects on the health and quality of live of the person dealing with it.
But that's not the actual topic/focus here either...
What the hell am I trying to say, exactly?
I guess I don't really know. Or I can't focus well enough to figure it out. Dizziness... yet another symptom of IDA. Ugh.
Sheesh.
Screw it.
But do I really feel that way? In some ways, I do. There's a larger part of me that's had it, totally and completely HAD IT with feeling this way. It's been coming on for a few years, though some of the issues recently discovered appear as new---but it doesn't mean that they actually are. In fact, maybe it's the same issues just now revealed. Geez. I can't even get my thoughts straight on this.
I do what little exercise I can, when I can. I push almost every day for this, making sure the attempt is made, if nothing else. Mostly, I end up doing very little because there simply isn't enough energy or strength to actually DO the task(s). Doctors love to say... "Exercise will help." That's a whole lot like having an empty gas tank and expecting to drive. In fact, it's exactly like that. I simply don't have anything to work with.
Quality of life. I see so many people who don't understand just how blessed they are to feel healthy, be healthy, and be able to live their lives somewhat normally. I'm not judging them at all, but I am curious as to if they know just how blessed they are to ONLY have a minor headache, or maybe fatigue from staying up too late, etc. I would SO trade places with them.
But that's not the topic here either...
Yes, I'm having trouble getting to the f'ing point. It's one of those days, so it is what it is.
So what DO I know for sure? Well, I know my GP (who is a pretty good Dr.) is out of the country until next week and that his secretary/nurse told me that they prescribe iron tablets for anemia. Really? Because it seems to me that putting something into your body that your body can't hold on to is... like putting gas in a car that has a hole in the tank. *sigh*
I really want to know WHY this is happening. There isn't any real "Idiopathic" iron deficiency anemia. It's always caused by something. The most obvious things are checked, and when they show to not be the cause.. it's shrugged off. Why? IDA is NOT a minor thing, and it has terrible affects on the health and quality of live of the person dealing with it.
But that's not the actual topic/focus here either...
What the hell am I trying to say, exactly?
I guess I don't really know. Or I can't focus well enough to figure it out. Dizziness... yet another symptom of IDA. Ugh.
Sheesh.
Labels:
answers,
blog,
chronic illness,
depression,
dreams,
emotion,
ferritin,
healing,
health,
heart,
IDA,
Iron Deficiency Anemia
Subscribe to:
Posts (Atom)


